Cholangio Heroes

Cholangio Heroes is a video podcast produced by the Cholangiocarcinoma Foundation that features a wide array of guests impacted by cholangiocarcinoma (bile duct cancer). Raising awareness and education about the complex disease is told through the stories of those it affects the most.

Listen on:

  • Podbean App
  • Spotify

Episodes

2 days ago

This month is National Make-A-Will Month and joining the podcast is the Cholangiocarcinoma Foundation's Major Gift Officer, Julie Cunningham. She explains the benefits of making a will and other planned giving, such as bequests. You can learn more at https://cholangiocarcinoma.org/donate/planned-giving/

Sunday Aug 07, 2022

A MATTer of Hope is a community of cholangiocarcinoma and rare cancer advocates, committed to fundraising, campaigning, and calling attention to a very fatal, often overlooked, and clinically misunderstood cancer. The organization was founded by Christine Sgambato in honor of her husband, Matt Sgambato, who passed away from cholangiocarcinoma. She explains how her nonprofit "creates fun events and contests, that bring our community together, drawing from our inspiration" with proceeds going to the Cholangiocarcinoma Foundation.MORE INFO: https://amatterofhope.org/

Sunday Jul 31, 2022

Balance is a word that Dr. Geret Giles says is key to caretaking for a loved one with cholangiocarcinoma. How do you achieve that balance? Giles provides some guidance about that in Episode 17. He can also be directly contacted at Ask Dr. Giles, https://cholangiocarcinoma.org/ask-dr-giles/

Friday Jul 22, 2022

Cholangiocarcinoma survivor, Lynnette McMahon, shares how joining the patient registry through the Cholangiocarcinoma Foundation's trusted partner, Ciitizen, connected her to a clinical trial that saved her life. She also tells what it was like to be interviewed on CBS Morning News. CBS Story: https://www.cbsnews.com/news/ciitizen-tech-entrepreneur-works-to-help-patients-communicate-health-history/

Friday Jul 15, 2022

What is it like to be a caregiver of a loved one who has cholangiocarcinoma? Toni lived it and as a mentor to Tung, is helping him cope as a caregiver thanks to the CholangioConnect program. LEARN MORE: CholangioConnect.org

Friday Jul 08, 2022

EPISODE 14: Dr. Shishir Maithel is a special guest on Cholangio Heroes. The surgical oncologist is a valued member of the CCF Scientific Medical Advisory Board. He shares his focus on collaborating with medical oncologists and the two trials he's leading to benefit patients. WATCH: https://www.youtube.com/watch?v=pn-WW2cYAdc  

Friday Jul 01, 2022

Dave's daughter, Sarah Bennett, started a private Facebook group page called, "Cholangio Warriors," after being diagnosed with cholangiocarcinoma. The page brought comfort to Betsy who didn't know that Sarah was Dave's daughter. Find out in this episode how Sarah's social media gesture has changed lives long after hers ended. INFO: cholangiocarcinoma.org

Friday Jun 24, 2022

Grace and Tessa share how being involved with the CholangioConnect mentoring program has impacted their lives. Find out more about the program at cholangioconnect.org

Friday Jun 17, 2022

Delorean Ostrom's wife, Mandy, was diagnosed with cholangiocarcinoma while pregnant with their second child. He talks about the experience and why he has chosen to run a marathon every month in 2022 to spread awareness about the disease and raise funds for much-needed research.INFO: https://cholangiocarcinoma.org/racing-for-hope/

Friday Jun 10, 2022

Samantha Pear, a graduate student earning a master's degree in public health with an emphasis in applied epidemiology, talks about the article she co-authored that is published in the Journal of Clinical Oncology titled, "Barriers for clinical trial enrollment in cholangiocarcinoma patients."INFO: https://ascopubs.org/doi/abs/10.1200/JCO.2022.40.4_suppl.407

Image

CHOLANGIOCARCINOMA
Bile Duct Cancer

Cholangiocarcinoma is a rare cancer. Of the top eight deadliest cancers, seven are rare. Rare cancers have a 5-year survival rate under 50% with the cholangiocarcinoma 5-year survival rate being approximately 20%1.

There are three types of cholangiocarcinoma: Intrahepactic, extrahepactic and perihilar, and the mortality rate has increased dramatically in the last decade. According to a recent study, it is estimated that by 2040, liver and bile duct cancer will be the third deadliest cancer in the United States.

More than 10,000 Americans are newly diagnosed with this deadly cancer. Cholangio Heroes is a podcast to raise awareness about the disease and the Cholangiocarcinoma Foundation.

Learn more
at
CHOLANGIOCARCINOMA.ORG

Copyright 2022 All rights reserved.

Podcast Powered By Podbean