Cholangio Heroes

Cholangio Heroes is a video podcast produced by the Cholangiocarcinoma Foundation that features a wide array of guests impacted by cholangiocarcinoma (bile duct cancer). Raising awareness and education about the complex disease is told through the stories of those it affects the most.

Listen on:

  • Apple Podcasts
  • Podbean App
  • Spotify

Episodes

Friday Sep 23, 2022

Born and raised in New Jersey, Sean Patrick has been working non-stop on the craft of being a frontman for cover bands. He is also a cholangiocarcinoma survivor who is recovering from a liver transplant. He shares his journey daily on his Instagram account and encourages others to become the frontman of their lives. ABOUT SEAN: https://www.seanpatricknj.com/

Friday Sep 16, 2022

Tanya McConnell shares her story of the loss of her father to cholangiocarcinoma and her experience with advocacy. If you are interested in becoming a patient or research advocate for the Cholangiocarcinoma Foundation, please visit https://cholangiocarcinoma.org/volunteer-program/

Friday Sep 09, 2022

Ohio Rep. Cindy Abrams (R-Dist. 29) talks about the passage of House Bill 537 that she sponsored. The legislation was signed into law and goes into effect on Sept. 23, 2022, and recognizes Feb. 12th as Cholangiocarcinoma Awareness Day.READ THE BILL: https://search-prod.lis.state.oh.us/solarapi/v1/general_assembly_134/bills/hb537/EN/05/hb537_05_EN?format=pdf

Friday Sep 02, 2022

CCF Volunteer Coordinator Claire Condrey discusses the opportunities to volunteer for the Cholangiocarcinoma Foundation.LEARN MORE: https://cholangiocarcinoma.org/volunteer-program/

Saturday Aug 27, 2022

In this episode, Dr. Mark Yarchoan talks about the research funded by the Cholangiocarcinoma Foundation and its advances toward new clinical trials to treat bile duct cancer.INFO: https://cholangiocarcinoma.org/treatment-options/

Friday Aug 19, 2022

International Cholangiocarcinoma Research Network(ICRN Board Chairman Dr. Mitesh Borad talks about advancements in the cholangiocarcinoma field, what lies ahead for the future of the disease, and how C2T2 was formed to create projects to advance research. Learn more about ICRN here https://cholangiocarcinoma.org/icrn/

Saturday Aug 13, 2022

This month is National Make-A-Will Month and joining the podcast is the Cholangiocarcinoma Foundation's Director of Development, Julie Cunningham. She explains the benefits of making a will and other planned giving, such as bequests. You can learn more at https://cholangiocarcinoma.org/donate/planned-giving/

Sunday Aug 07, 2022

A MATTer of Hope is a community of cholangiocarcinoma and rare cancer advocates, committed to fundraising, campaigning, and calling attention to a very fatal, often overlooked, and clinically misunderstood cancer. The organization was founded by Christine Sgambato in honor of her husband, Matt Sgambato, who passed away from cholangiocarcinoma. She explains how her nonprofit "creates fun events and contests, that bring our community together, drawing from our inspiration" with proceeds going to the Cholangiocarcinoma Foundation.MORE INFO: https://amatterofhope.org/

Sunday Jul 31, 2022

Balance is a word that Dr. Geret Giles says is key to caregiving for a loved one with cholangiocarcinoma. How do you achieve that balance? Giles provides some guidance about that in Episode 17. He can also be directly contacted at Ask Dr. Giles, https://cholangiocarcinoma.org/ask-dr-giles/

Friday Jul 22, 2022

Cholangiocarcinoma survivor, Lynnette McMahon, shares how joining the patient registry through the Cholangiocarcinoma Foundation's trusted partner, Ciitizen, connected her to a clinical trial that saved her life. She also tells what it was like to be interviewed on CBS Morning News.
CBS Story: https://www.cbsnews.com/news/ciitizen-tech-entrepreneur-works-to-help-patients-communicate-health-history/

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CHOLANGIOCARCINOMA
Bile Duct Cancer

Cholangiocarcinoma is a rare cancer. Of the top eight deadliest cancers, seven are rare. Rare cancers have a 5-year survival rate under 50% with the cholangiocarcinoma 5-year survival rate being approximately 20%1.

There are three types of cholangiocarcinoma: Intrahepactic, extrahepactic and perihilar, and the mortality rate has increased dramatically in the last decade. According to a recent study, it is estimated that by 2040, liver and bile duct cancer will be the third deadliest cancer in the United States.

More than 10,000 Americans are newly diagnosed with this deadly cancer. Cholangio Heroes is a podcast to raise awareness about the disease and the Cholangiocarcinoma Foundation.

Learn more
at
CHOLANGIOCARCINOMA.ORG

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