Cholangio Heroes
Cholangio Heroes is a video podcast produced by the Cholangiocarcinoma Foundation that features a wide array of guests impacted by cholangiocarcinoma (bile duct cancer). Raising awareness and education about the complex disease is told through the stories of those it affects the most.
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Episodes
Friday Dec 02, 2022
Friday Dec 02, 2022
In this episode, Becky Stapleton and her mom Marianne Wilger talk about what they are doing to prepare for February, which is Cholangiocarcinoma Awareness Month. Tune in for tips and tricks and find out how to get involved locally.
Tuesday Nov 22, 2022
Tuesday Nov 22, 2022
In this episode, Ambuj Srivastava, a former caregiver, shares his experience as a caregiver and some essential tips for caregivers. He also talks about how he connected with a mentor that inspirited him to get involved with the Foundation and become a Research Advocate.
Friday Nov 18, 2022
Friday Nov 18, 2022
In this episode, Dr. Ryan Fields talks about how he connected with the Foundation and how much-needed research is being completed through the Cancer Moonshot Program.This program provides an opportunity for cholangiocarcinoma patients, their caregivers, and advocates to participate in this research effort to better understand cholangiocarcinoma.
Friday Nov 11, 2022
Friday Nov 11, 2022
In this episode, Lourdes Rocha-Nussbaum talks about the Cholangiocarcinoma Foundation's Veteran Project. Including risk factors that may have contributed to the diagnosis of cholangiocarcinoma. Learn more at https://cholangiocarcinoma.org/veterans-project/.
Monday Nov 07, 2022
Monday Nov 07, 2022
In this episode, Candace Tise, CCF's Community Fundraising Specialist talks about the unique ways you can raise money for the Foundation.
Friday Oct 28, 2022
Friday Oct 28, 2022
In this episode, Hein My Pham shares her diagnosis story and how she connected with the Foundation. She is a 20 year survivor and living with #CCAHope.
Friday Oct 21, 2022
Friday Oct 21, 2022
In this episode, Stacie Lindsey talks about the importance in understanding the recent FDA clearance of Praxis's Investigational New Drug (IND) - PRAX-222 EMBRAVE - that used patient data from Invitae Ciitizen in its clinical trial. This opens the doors for advancing research using data from patient registries, like ICPR.
cholangiocarcinoma.org
Friday Oct 14, 2022
Friday Oct 14, 2022
Sarah Rypma is a survivor of cholangiocarcinoma still undergoing treatment yet she chooses to "thrive" despite the disease. She shares her story from diagnosis to today.More survivor stories: https://cholangiocarcinoma.org/newly-diagnosed/
Friday Oct 07, 2022
Friday Oct 07, 2022
Cholangiocarcinoma survivor Jim Hoofnagle shares his cancer journey and why he is helping others - he refers to as "travelers" - as a mentor in the CholangioConnect program. Learn more at https://cholangiocarcinoma.org/cholangioconnect/
Saturday Oct 01, 2022
Saturday Oct 01, 2022
Cholangiocarcinoma survivor, Tom Leitzke, talks about his experience mentoring other patients, who he calls "travelers." Find out why in this episode. Learn more about CholangioConnect, the mentoring program of the Cholangiocarcinoma Foundation at https://cholangiocarcinoma.org/cholangioconnect/
CHOLANGIOCARCINOMA
Bile Duct Cancer
Cholangiocarcinoma is a rare cancer. Of the top eight deadliest cancers, seven are rare. Rare cancers have a 5-year survival rate under 50% with the cholangiocarcinoma 5-year survival rate being approximately 20%1.
There are three types of cholangiocarcinoma: Intrahepactic, extrahepactic and perihilar, and the mortality rate has increased dramatically in the last decade. According to a recent study, it is estimated that by 2040, liver and bile duct cancer will be the third deadliest cancer in the United States.
More than 10,000 Americans are newly diagnosed with this deadly cancer. Cholangio Heroes is a podcast to raise awareness about the disease and the Cholangiocarcinoma Foundation.
Learn more
at
CHOLANGIOCARCINOMA.ORG