Cholangio Heroes

Cholangio Heroes - Toni & Tung (Mentor & Mentee)

What is it like to be a caregiver of a loved one who has cholangiocarcinoma? Toni lived it and as a mentor to Tung, is helping him cope as a caregiver thanks to the CholangioConnect program. LEARN MORE: CholangioConnect.org

Cholangio Hereos - Dr. Shishir Maithel on collaboration for patient benefit

EPISODE 14: Dr. Shishir Maithel is a special guest on Cholangio Heroes. The surgical oncologist is a valued member of the CCF Scientific Medical Advisory Board. He shares his focus on collaborating with medical oncologists and the two trials he's leading to benefit patients.
WATCH: https://www.youtube.com/watch?v=pn-WW2cYAdc
 

Cholangio Heroes - Betsy & Dave discuss Cholangio Warriors

Dave's daughter, Sarah Bennett, started a private Facebook group page called, "Cholangio Warriors," after being diagnosed with cholangiocarcinoma. The page brought comfort to Betsy who didn't know that Sarah was Dave's daughter. Find out in this episode how Sarah's social media gesture has changed lives long after hers ended. INFO: cholangiocarcinoma.org

Cholangio Heroes - Grace & Tessa share their mentorship experience

Grace and Tessa share how being involved with the CholangioConnect mentoring program has impacted their lives. Find out more about the program at cholangioconnect.org

Cholangio Heros - Delorean Ostrom on Racing for Hope

Delorean Ostrom's wife, Mandy, was diagnosed with cholangiocarcinoma while pregnant with their second child. He talks about the experience and why he has chosen to run a marathon every month in 2022 to spread awareness about the disease and raise funds for much-needed research.INFO: https://cholangiocarcinoma.org/racing-for-hope/

Cholangio Heroes - Samantha Pear on Overcoming Barriers to Clinical Trial Access

Samantha Pear, a graduate student earning a master's degree in public health with an emphasis in applied epidemiology, talks about the article she co-authored that is published in the Journal of Clinical Oncology titled, "Barriers for clinical trial enrollment in cholangiocarcinoma patients."INFO: https://ascopubs.org/doi/abs/10.1200/JCO.2022.40.4_suppl.407

Cholangio Heroes - Meredith McGuffage on Moving for the Cure

Episode 9 is all about Moving for the Cure. Learn how you can participate from TeamCCF Coordinator Meredith McGuffage.https://cholangiocarcinoma.org/moving-for-the-cure/ 

Cholangio Heroes - Conner O’Brien of Invitae Ciitizen

Welcome, Conner O'Brien from Invitae Ciitizen, who talks about the partnership with the Cholangiocarcinoma Foundation and the services provided in a global patient registry. More details at https://www.ciitizen.com/ccf/

Cholangio Heroes - Melinda Bachini on the Newly Diagnosed program

Twelve-year survivor of intrahepatic cholangiocarcinoma, Melinda Bachini, shares her story and how it helped create CCF's Newly Diagnosed program. For more information go to https://cholangiocarcinoma.org/newly-diagnosed/

Cholangio Heroes - Jonathan Whiting’s 21 Miles of Hope

Sixty-year-old Jonathan Whiting of St. Louis is swimming the English Channel to raise awareness about cholangiocarcinoma - lethal cancer that took the life of his wife, Lori Whiting. Find out how you can donate to the cause at 21MilesofHope.org.