Cholangio Heroes

Cholangio Heroes - Sean Patrick talks about his liver transplant

Born and raised in New Jersey, Sean Patrick has been working non-stop on the craft of being a frontman for cover bands. He is also a cholangiocarcinoma survivor who is recovering from a liver transplant. He shares his journey daily on his Instagram account and encourages others to become the frontman of their lives. ABOUT SEAN: https://www.seanpatricknj.com/

Cholangio Heroes - Tanya McConnell speaks about advocacy

Tanya McConnell shares her story of the loss of her father to cholangiocarcinoma and her experience with advocacy. If you are interested in becoming a patient or research advocate for the Cholangiocarcinoma Foundation, please visit https://cholangiocarcinoma.org/volunteer-program/

Cholangio Heroes - Ohio Rep. Cindy Abrams talks about passage of HB 537

Ohio Rep. Cindy Abrams (R-Dist. 29) talks about the passage of House Bill 537 that she sponsored. The legislation was signed into law and goes into effect on Sept. 23, 2022, and recognizes Feb. 12th as Cholangiocarcinoma Awareness Day.READ THE BILL: https://search-prod.lis.state.oh.us/solarapi/v1/general_assembly_134/bills/hb537/EN/05/hb537_05_EN?format=pdf

Cholangio Heroes - Claire Condrey on volunteering for CCF

CCF Volunteer Coordinator Claire Condrey discusses the opportunities to volunteer for the Cholangiocarcinoma Foundation.LEARN MORE: https://cholangiocarcinoma.org/volunteer-program/

Cholangio Heroes - Dr. Mark Yarchoan about CCF research funding

In this episode, Dr. Mark Yarchoan talks about the research funded by the Cholangiocarcinoma Foundation and its advances toward new clinical trials to treat bile duct cancer.INFO: https://cholangiocarcinoma.org/treatment-options/

Cholangio Heroes - Dr. Mitesh Borad on the future of cholangiocarcinoma

International Cholangiocarcinoma Research Network(ICRN Board Chairman Dr. Mitesh Borad talks about advancements in the cholangiocarcinoma field, what lies ahead for the future of the disease, and how C2T2 was formed to create projects to advance research. Learn more about ICRN here https://cholangiocarcinoma.org/icrn/

Cholangio Heroes - Julie Cunningham, CCF Director of Development

This month is National Make-A-Will Month and joining the podcast is the Cholangiocarcinoma Foundation's Director of Development, Julie Cunningham. She explains the benefits of making a will and other planned giving, such as bequests. You can learn more at https://cholangiocarcinoma.org/donate/planned-giving/

Cholangio Heroes - Christine Sgambato on A MATTer of Hope

A MATTer of Hope is a community of cholangiocarcinoma and rare cancer advocates, committed to fundraising, campaigning, and calling attention to a very fatal, often overlooked, and clinically misunderstood cancer. The organization was founded by Christine Sgambato in honor of her husband, Matt Sgambato, who passed away from cholangiocarcinoma. She explains how her nonprofit "creates fun events and contests, that bring our community together, drawing from our inspiration" with proceeds going to the Cholangiocarcinoma Foundation.MORE INFO: https://amatterofhope.org/

Cholangio Heroes - Dr. Geret Giles on Caregiving

Balance is a word that Dr. Geret Giles says is key to caregiving for a loved one with cholangiocarcinoma. How do you achieve that balance? Giles provides some guidance about that in Episode 17. He can also be directly contacted at Ask Dr. Giles, https://cholangiocarcinoma.org/ask-dr-giles/

Cholangio Heroes - Lynnette McMahon

Cholangiocarcinoma survivor, Lynnette McMahon, shares how joining the patient registry through the Cholangiocarcinoma Foundation's trusted partner, Ciitizen, connected her to a clinical trial that saved her life. She also tells what it was like to be interviewed on CBS Morning News.
CBS Story: https://www.cbsnews.com/news/ciitizen-tech-entrepreneur-works-to-help-patients-communicate-health-history/